Being a parent of a child with a motility disorder can be extremely difficult. It can be heart-wrenching to watch your child be ill and not be able to make him or her better. It is an emotional roller coaster as a parent deals with finding a doctor, a diagnosis, treatment and taking care of his/her other children and family responsibilities.
Children may be born with a digestive motility disease or disorder or acquire one later in childhood or as an adult. Feeding issues, nutrition, hospitalization, surgeries, pain and discomfort, constipation, diarrhea, reflux, bathroom issues and school problems are just some of the challenges that can be present.
Because of the special concerns and problems associated with pediatric patients and their families, AGMD has developed an outreach program dedicated to fulfilling their needs.